Autism in Social Media

Autism is usually diagnosed in childhood and can seriously affect families, but using the best, quality resources, communities and web tools may help them cope with this condition.

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Autism-related Community sites, Facebook groups and Forums

Community Sites and Forums

AutismOne

Description: "Autism One is a nonprofit, charity organization 501(c)(3) started by a small group of parents of children with autism. Parents are and must remain the driving force of our community, the stakes are too high and the issues too sacred to delegate to outside interests."
Quality: "The Autism One Conference, Autism One Radio, Autism One Outreach and Autism in Action initiatives educate more than 100,000 families every year about prevention, recovery, safety, and change."

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Autism.change.org

Description and content: "Autism is a topic with many perspectives, each of which is important to fully appreciating its impact. We have therefore written primers on Autism from two different perspectives: one from an autistic self-advocate and another from a parent of a child with autism."
Quality: Managed by Kristina Chew and Dora Raymaker.

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Autism Community

Description: "The Autism Community is a blog where you can find information about Autism Spectrum Disorder, treatment options, advocacy issues, resources for families and teachers of children with ASD, and other helpful information. In addition to this, I want this blog to be forum in which the autism community can come together and share their thoughts and get their questions answered."
Quality: "This blog was created and is moderated by Abby Twyman, M.Ed. She has been working with people with autism and their families since 2004. She has a Master of Education degree from the University of Washington where she specialized in teaching children with moderate to severe disabilities. Additionally, she is a certified special education teacher. Currently she is also preparing to sit for the Behavior Analyst Certification Board exam in August 2009, after which she will be a Board Certified Behavior Analyst (BCBA)."

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Autism Speaks

Description: "Autism Speaks was founded in February 2005 by Bob and Suzanne Wright, grandparents of a child with autism. Since then, Autism Speaks has grown into the nation's largest autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families."
Quality: Useful information for parents, walk events, community resources.

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Autism Community Training

Description: "ACT is an information and referral service created to support families of children with Autism Spectrum Disorders in the province of British Columbia, Canada."
Quality: Clear disclaimer, contact information and privacy policy.

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Revolution Health - Autism Community

Description and content: "Revolution Health is a leading consumer-centric health company founded to transform how people approach their overall health and wellness. By putting individuals at the center of their own healthcare, Revolution Health allows them to make informed choices and offers more convenience and control over their individual healthcare decisions."
Quality: Accredited by HONcode.

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yourautism

Description: "This website has been set up as a place for neurotypical people to reflect on autism and aspergers syndrome."
Quality: "This site has been set up by Rob Thomas, who has an interest in how people with autism can have thier rights upheld as equal citizens, he is based in Pembrokeshire, Wales."

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Talk About Autism

Description: "The TreeHouse Trust exists to transform the lives of families affected by autism through piloting, evaluating, delivering and disseminating innovative, evidence based ideas and interventions for learning."
Quality: Groups, questions/answers about autism and members can ask medical professionals.

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NetMums

Description and content: "Here in this page we offer some basic information about ASD, debunk some myths and provide a gateway to gaining a more in-depth understanding of autism and getting specialist support and advice."
Quality: "Founded in 2000 Netmums is the UK's fastest-growing online parenting organisation with over half a million members, mostly mums."

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Autism Parents

Description and content: Galleries, autism-related discussions not only for parents.
Quality: Almost 4000 members with almost 4000 discussions.

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Autism Support Network

Description: "Our goal is to short-cut the uphill battle individuals and families undertake when faced with autism – whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information."
Quality: "Free autism education and peer support community for adults, parents and children seeking information and support for ASD."

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Autism Blogger

Description: "A community of people who`s lives have been affected by autism."
Quality: "Our mission is to allow people who have been affected by autism to share their stories, provide support and to help others."

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IAN Community

Description: "The IAN Community is an online environment designed to act as an inviting library and meeting place where everyone concerned with autism spectrum disorders can learn more about autism research."
Quality: Privacy policy, disclaimer and contact information are available. It is sponsored by Autism Speaks and the Simons Foundation.

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About.com - Autism Forum

Description: "Whether your brand new to autism or have decades of experience, your involvement helps make this forum a great place to share, connect, raise questions, debate and more."
Quality: Accredited by HONcode.

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eHealthForum - Autism Forum

Description: "Welcome to the Autism Forum - a health community featuring member and doctor discussions ranging from a specific symptom to related conditions, treatment options, medication, side effects, diet, and emotional issues surrounding medical conditions."
Quality: It is accredited by HONcode.

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Healia - Autism Online Health Community and Support Group

Description: "Welcome to the Healia Health Community for Autism. Through this Autism support group, you can get Autism information, share experiences about Autism, connect with peers, and get answers to your Autism questions from health professionals."
Quality: Accredited by HONcode.

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MDJunction - Autism Support Group

Description: "A community of family members and friends dedicated to dealing with Autism, together."
Quality: Accredited by HONcode.

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MedHelp - Autism Community

Description: "This forum is for help, questions and support regarding Autism."
Quality: Accredited by HONcode.

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WebMD® - Autism Support Community

Description: "Whether you have received the diagnosis or in pursuit of one, get support and advice here for living on the spectrum."
Quality: Accredited by HONcode.

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Medpedia - Autism Spectrum Disorders

Description: "This community is a place to share information regarding Autism Spectrum Disorders (ASD), including Autism, Asperger Syndrome, and Atypical Autism."
Quality: Medpedia is a medical encyclopaedia managed and edited by medical professionals.

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TheAUTSPOT,com

Description: "The AUTSPOT is an online autism resource for parents, families, and specialists whose lives are touched by the autism spectrum disorders."
Quality: "You can learn more information on autism characteristics, early signs of autism in infants, diagnosis, and all the different therapies and diets to help kids with autism. The resources section contains over 7,000 autism resources (therapists, doctors, support groups, schools for students with autism, lawyers, dentists, diet providers, summer camps, etc.)."

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Inspire - Autism Community

Description: An online community connecting patients with autism, and their caregivers, family and friends.
Quality: Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Inspire works with trusted health partners to build safe and secure health and wellness groups.

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The Art of Autism

Description: "The Art of Autism is a collaborative project that brings awareness to the general public the creative abilities of people with autism. Our plan is to do this, in part, by facilitating exhibits of their work throughout the world."
Quality: Description and contact information are available.

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FaceBook Groups

Facebook is a free social networking site where users can join groups. In these groups, members can post messages, interact with others or find relevant content. A few of the numerous Autism groups:

Autism Awareness

Description and content: "This group is intended as a forum for people interested in autism to connect and network."

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Autism

Description and content: "1 in 150 children are diagnosed with AUTISM. One is mine." (Over 8,000 members)

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Autism!

Description and content: "A learning and behavior disorder characterized by difficulty in understanding, or making sense of, what one sees and hears, and in learning to talk and to understand the meanings of words. Some children suffering from autism have normal or even high intelligence, and many can be helped through special educational programs to cope with their handicap."

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The Art of Autism

Description and content: "The Art of Autism: Shifting Perceptions"features 77 artists and poets on the spectrum."

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Click here to see other autism-related Facebook groups.

FaceBook Applications

Autism Awareness

Description: Send Autism Items to Spread Awareness of an Important Cause.

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Autism Picture Cards

Description: "Spread autism awareness and have a little fun! Send a picture card to your friends. Picture cards are often used on schedules for people who can't read or communicate well."

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Autism is usually diagnosed in childhood and can seriously affect families, but using the best, quality resources, communities and web tools may help them cope with this condition.