Websites containing quality and reliable health information can provide patients with valuable support and resources. You can follow the updates and news of these sites easily with RSS as described in this video.
If you don't want to deal with using RSS, PeRSSonalized Cystic Fibrosis, a free, simple, multi-lingual Webicina service that features the latest news of the most relevant social media resources focusing on medical conditions and specialties, is created for you.
This video shows how it works:
You can insert the tepm "cystic fibrosis" into the custom Pubmed feed box to receive the latest peer-reviewed publications focusing on cystic fibrosis automatically.
Description: "Basic and in-depth information about cystic fibrosis. What is cystic fibrosis? What causes cystic fibrosis? What are the symptoms? How is cyatic fibrosis diagnosed and treated? What alternative treatments are available? What is it like living with, or parenting a child with, cystic fibrosis?"
Description: "eMedicineHealth.com is a consumer health information site that was launched in May 2003. The site contains over 900 health and medical articles written by physicians for patients and consumers."
Description: "Health24 content is educational, relevant, and medically reviewed. The aim of the editorial is to enable readers to make informed decisions about their health.
The site covers a wide range of topics, such as in-depth information on common medical conditions, diet, fitness, pregnancy, parenting, men's and women's health. It is continually being updated by a team of medical specialists and journalists."
Description: "The latest Cystic Fibrosis News articles published daily. Includes news on Cystic Fibrosis (CF) or Mucoviscidosis - a life-threatening inherited genetic disease. Includes current research, treatment, symptoms and screening programs."
Quality: The most comprehensive medical news site. More than 2 million unique visitors every month.
Description: "MedicineNet.com is an online, healthcare media publishing company. It provides easy-to-read, in-depth, authoritative medical information for consumers via its robust, user-friendly, interactive web site."
Quality: Since 1996, MedicineNet.com has had a highly accomplished, uniquely experienced team of qualified etexecutives in the fields of medicine, healthcare, Internet technology, and business to bring you the most comprehensive, sought after healthcare information anywhere.
Description: "MedlinePlus will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news."
Description: "We want to break down the "medical language barrier" between the doctor and the patient. Critical medical information must be presented in a clear and understandable language so that the patient fully understands his or her choices and decisions. Ultimately, it is the patient who must make the critical health choices."
Description: "ScienceDaily is one of the Internet’s most popular science news web sites. Since starting in 1995, the award-winning site has earned the loyalty of students, researchers, healthcare professionals, government agencies, educators and the general public around the world. Now with more than 3 million monthly visitors, ScienceDaily generates nearly 15 million page views a month and is steadily growing in its global audience."
Description: "The WebMD content staff blends award-winning expertise in medicine, journalism, health communication and content creation to bring you the best health information possible. Our esteemed colleagues at MedicineNet.com are frequent contributors to WebMD and comprise our Medical Editorial Board. Our Independent Medical Review Board continuously reviews the site for accuracy and timeliness."
Description: "We are a nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle. Our focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure."
Quality: "The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. We fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support."
Description: "People who support Cystic Fibrosis Canada come from across Canada from every walk of life and age group. They’re part of an international community fighting to make a difference each day in the lives of people affected by cystic fibrosis."
Quality: "Cystic Fibrosis Canada’s mission is to help people with cystic fibrosis (CF): funds research towards the goal of a cure or control for cystic fibrosis, supports high quality CF care, promotes public awareness of cystic fibrosis, and raises and allocates funds for these purposes."
Description: "Cystic Fibrosis Worldwide (CFW), formed after the merger of the International Association of Cystic Fibrosis Adults and the International Cystic Fibrosis (Mucoviscidosis) Association, is dedicated to improving quality of life and life expectancy for persons living with cystic fibrosis globally."
Quality: "CFW has over 60 member countries with a number of members coming from developing parts of the world. With these new memberships comes an awareness of the desperate situation facing those who have cystic fibrosis, caregivers or medical professionals in developing countries. Cystic Fibrosis Worldwide is working to bring care to patients who are in desperate need across the globe."
Delicious is a social bookmarking service that allows users to tag, save, manage and share web pages from a centralized source. With emphasis on the power of the community, Delicious greatly improves how people discover, remember and share on the Internet.
StumbleUpon helps you discover and share great websites. As you click Stumble!, we deliver high-quality pages matched to your personal preferences. These pages have been explicitly recommended by your friends or one of 6 million+ other websurfers with interests similar to you.
Diigo: If you browse or read a lot on the web, we believe you will find Diigo indispensable. Diigo is two services in one -- it is a research and collaborative research tool on the one hand, and a knowledge-sharing community and social content site on the other.
Click here to see all the cystic fibrosis-related sites submitted on Diigo.com.