Medicine in Social Media
Epilepsy in Social Media
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All the relevant and quality social media resources from blogs and podcasts to community sites and Twitter users focusing on epilepsy.

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Epilepsy Community Sites, FaceBook Groups and Forums



Community Sites and Forums


Epilepsy.com


  • Description: "Epilepsy.com is a dynamic online resource providing in-depth information and community for people living with epilepsy, and is the home of the Epilepsy Therapy Project."
  • Quality: "The mission of epilepsy.com is to inform and empower patients and families facing newly diagnosed epilepsy or those struggling with epilepsy that has resisted treatment."

Epilepsy.com

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Epilepsy Foundation


  • Description: "The Epilepsy Foundation of America® is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families."
  • Quality: "The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through services, education, advocacy and research."

Epilepsy Foundation

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Epilepsy Halton Peel


  • Description: "Building a community for people living with seizures."
  • Quality: "Epilepsy Halton Peel is dedicated to enhancing the quality of life for people living with seizure disorders through counseling and support services."

Epilepsy Halton Peel

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PatientsLikeMe Epilepsy Community


  • Description: "PatientsLikeMe is committed to providing a better, more effective way to capture valuable results and share them with patients, healthcare professionals, and industry organizations that are trying to treat the disease."
  • Quality: "Founded in 2004 by three MIT engineers whose collective experience spans from "running the world's only non-profit biotechnology laboratory to large-scale online commerce applications, PatientsLikeMe is a privately funded company dedicated to making a difference in the lives of patients diagnosed with life-changing diseases. Our personal experiences with ALS (Lou Gehrig's disease) inspired us to create a community of patients, doctors, and organizations that inspires, informs, and empowers individuals. We're committed to providing patients with access to the tools, information, and experiences that they need to take control of their disease."

PatientsLikeMe Epilepsy Community

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WebMD® - Epilepsy Community


  • Description: "Get expert insights into epilepsy and seizure disorders as well as advice from members on day-to-day living."
  • Quality: Accredited by HONcode.

WebMD Epilepsy Community

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Epilepsy Advocate


  • Description: "We are a community of Advocates and caregivers that lets you connect with those who share the same goal of achieving better seizure control."
  • Quality: "The Epilepsy Advocate community offers a variety of ways to get more information and become better connected. You’ll find personal videos, where you can see real people tell their stories, and there are tips and insights into getting the most from your treatment."

Epilepsy Advocate

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eHealthForum - Epilepsy Forum


  • Description: "Welcome to the Epilepsy Forum - a health community featuring member and doctor discussions ranging from a specific symptom to related conditions, treatment options, medication, side effects, diet, and emotional issues surrounding medical conditions."
  • Quality: It is accredited by HONcode.

eHealthForum Epilepsy Forum

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HealingWell - Epilepsy Forum


  • Description: "HealingWell.com is a thriving social network and support community for patients, caregivers, and families coping with the daily struggles of diseases, disorders and chronic illness."
  • Quality: Health content is contributed by reputable health organizations, including the National Institutes of Health, Mediwire and e-HealthSource.

HealingWell Epilepsy Forum

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MDJunction - Epilepsy Support Group


  • Description: "A community of patients, family members and friends dedicated to dealing with Epilepsy, together. "
  • Quality: Accredited by HONcode.

MDJunction Epilepsy Support Group

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MedHelp - Epilepsy Community


  • Description: "The MedHelp site connects people with the leading medical experts and others who have similar experiences. Today, MedHelp empowers over 5.5 million people each month to take control over their health and find answers to their medical questions. MedHelp has over 14 years of accumulated information from doctors and other patients across hundreds of conditions."
  • Quality: Accredited by HONcode.

MedHelp Epilepsy Community

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Epilepsy Society


  • Description: "We are the leading national epilepsy medical charity working for everyone affected by epilepsy, through our cutting edge research, fundraising and awareness campaigns, and expert care."
  • Quality: "Our vision is a full life for everyone affected by epilepsy. We connect and support people with a whole range of charitable services."

Epilepsy Society

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Inspire - Epilepsy Community


  • Description: An online community connecting patients with seizures, and their caregivers, family and friends.
  • Quality: Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Inspire works with trusted health partners to build safe and secure health and wellness groups.

Inspire Epilepsy Community

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FaceBook Groups


Facebook is a free social networking site where users can join groups. In these groups, members can post messages, interact with others or find relevant content. A few of the numerous epilepsy groups:




Epilepsy Support and Awareness


  • Description and content: "For those that live with Epilepsy or know someone that does. Feel free to post any questions or comments that you have that would be helpful to everyone."

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Epilepsy Foundation of America


  • Description and content: "The Epilepsy Foundation is the national voluntary agency solely dedicated to the welfare of the more than 3 million people with epilepsy in the U.S. and their families."

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Control Epilepsy


  • Description and content: "People with epilepsy often feel like they're the only ones who have it, but it is more common than you think. This is for anybody who has epilepsy or who knows someone that has epilepsy."

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Epilepsy Support Group


  • Description and content: "This is a support group for folks with epilepsy, for those with loved ones with epilepsy, or for anyone who wants more information on epilepsy."

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Epilepsy Advocate


  • Description and content: "Welcome to Epilepsy Advocate, a community of people living well with epilepsy, their family members, and their caregivers. Epilepsy Advocates are people just like you who have shown the courage to share their stories and provide support to others."

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Epilepsy Education


  • Description and content: "This goal of this group is hopefully that it will help spread awareness about a fairly common disease and help reduce the stigma associated with it."

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Epilepsy Society


  • Description and content: "We are the leading national epilepsy medical charity working for everyone affected by epilepsy, through our cutting edge research, fundraising and awareness campaigns, and expert care."

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Click here to see other epilepsy-related Facebook groups.


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All the relevant and quality social media resources from blogs and podcasts to community sites and Twitter users focusing on epilepsy.