Medicine in Social Media
Epilepsy in Social Media
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All the relevant and quality social media resources from blogs and podcasts to community sites and Twitter users focusing on epilepsy.

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Microblogging: Twitter and Friendfeed


Micro-blogging is the practice of sending brief text updates, photos, audio/video clips or links and make these public on a website and/or distributed to a private group of subscribers. These messages can be submitted by text messaging, instant messaging or e-mail.

Many micro-blogs provide short commentary about medical news, medical specialties or a company's products and services.

Webicina features two microblogging platforms including Twitter and Friendfeed.


Epilepsy on Twitter


Twitter is a free social networking and micro-blogging service that allows its users to send and read other users' updates, which are text-based posts of up to 140 characters in length.

In countries all around the world, people follow the sources most relevant to them and access information via Twitter as it happens—from breaking world news to updates from friends.



Epilepsy News / Organisations

Epilepsy Action
Epilepsy Action is a working name of British Epilepsy Association, a registered charity in England.

Epilepsy Australia
Epilepsy Australia is the national coalition of Australian Epilepsy Associations raising our voices as one on behalf of all Australians living with epilepsy.

Epilepsy Foundation
Not another moment lost to seizures.

Epilepsy Foundation of Victoria
Epilepsy Foundation of Victoria enhances the quality of life of people living with epilepsy through information, education, advocacy, support services and research.

Epilepsy Society
Working towards a full life for everyone affected by epilepsy.

Epilepsy Therapy Project
Accelerating new treatments for people living with epilepsy and seizures.

Epilepsy Toronto
An organization dedicated to the promotion of independence and optimal quality of life for people with epilepsy and their families.

EpilepsyCures
This site is for all who struggle with epilepsy, all seizure types, looking for answers and/or support/guidance. I've been thru it all-found the best docs at Mayo.

Medical News Today Epilepsy News
The latest epilepsy news published daily. Articles from research centers, universities and prestigious journals.

National Youth Council
Epilepsy Foundation National Youth Council.

News-Medical.Net Epilepsy News
Stay up to date with the latest Epilepsy news and research via News-Medical.Net

OrganizedWisdom Epilepsy
Health Wisdom on Epilepsy from OrganizedWisdom. Sharing quality resources, trends, and research to help people.

PEACE
Parents Educating AR about Children with Epilepsy.

PLM Epilepsy
Hundreds of people with epilepsy sharing their real world experiences.



People Who Post About Epilepsy

Arlene Martell
Author of Getting Adam Back, A Mother's Triumph Over Epilepsy and Austim and the publisher of EpilepsyMoms.com.

Cindy
Mother, business analyst, world watcher. Research interests: educating children with learning disabilities, anything regarding epilepsy and tourettes.

Jessica Smith
Writer, marketer and woman with epilepsy.

Joyce Bender
I am a woman with epilepsy on a crusade for competitive employment for people with disabilities and ending the stigma attached to epilepsy.

Richard Hicks
I have epilepsy but I dont let it have me.

Serene Low
I am a person with epilepsy and I try to promote epilepsy awareness as best as I can.

Stuart Ross McCallum
Author - Beyond my Control - One Man's Struggle with Epilepsy, Seizure Surgery and Beyond.



Directories


There are aggregators that help you find people tweeting about epilepsy.

Twellow


Twellow.com is currently grabbing publicly available messages from the Twitter.com micro-blogging service. They analyze and categorize each of the users responsible for those messages into the various categories found at Twellow.com.



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Search.twitter.com


It lets you track all the tweets and Twitter users focusing on epilepsy.

Epilepsy Twitter Search

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Friendfeed


Friendfeed is an aggregator that collects the updates from social networking websites, social bookmarking websites, blogs and micro-blogging updates, as well as any other type of RSS feed. Users can use this stream of information to create customized feeds to share (and comment) with friends. It offers a unique way to discover and discuss information among a community.


Epilepsy/surgery/meds


  • Description: "Anyone with questions, need to talk, need support, decide which way to go..."

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Click here to check all epilepsy-related Friendfeed rooms


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All the relevant and quality social media resources from blogs and podcasts to community sites and Twitter users focusing on epilepsy.