Medicine in Social Media
Hepatitis in Social Media
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Relevant, selected and quality social media resources from blogs and podcasts to community sites and Twitter users focusing on hepatitis.

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Hepatitis Community Sites, FaceBook Groups and Forums



Community Sites and Forums


PatientsLikeMe - Hepatitits-C Community


  • Description: "PatientsLikeMe is committed to providing a better, more effective way to capture valuable results and share them with patients, healthcare professionals, and industry organizations that are trying to treat the disease."
  • Quality: "Founded in 2004 by three MIT engineers whose collective experience spans from "running the world's only non-profit biotechnology laboratory to large-scale online commerce applications, PatientsLikeMe is a privately funded company dedicated to making a difference in the lives of patients diagnosed with life-changing diseases. Our personal experiences with ALS (Lou Gehrig's disease) inspired us to create a community of patients, doctors, and organizations that inspires, informs, and empowers individuals. We're committed to providing patients with access to the tools, information, and experiences that they need to take control of their disease."

PatientsLikeMe

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MDJunction - Hepatitis Support Groups




  • Description: "A community of patients, family members and friends dedicated to dealing with Hepatitis, together."
  • Quality: Accredited by HONcode.

MDJunction Hepatitis Support Groups

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HCV Support


  • Description: "HCV Support is a nonprofit organization dedicated to providing knowledge, support, and encouragement to those affected by hepatitis C through it's anonymous online support community."
  • Quality: "For over 6 years HCV Support, through the dedicated efforts of it's Online Staff and caring Members, has provided knowledge, support and encouragement to thousands of hepatitis C patients, their family members, friends, and caregivers from all around the globe."

HCV Support

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HealingWell - Hepatitis Forum


  • Description: "HealingWell.com is a thriving social network and support community for patients, caregivers, and families coping with the daily struggles of diseases, disorders and chronic illness."
  • Quality: Health content is contributed by reputable health organizations, including the National Institutes of Health, Mediwire and e-HealthSource.

HealingWell Hepatitis Forum

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WebMD® - Hepatitis Community


  • Description: "This group is for people with every type and stage of hepatitis to gather for information and support."
  • Quality: Accredited by HONcode.

 WebMD Hepatitis Community

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eHealthForum - Liver Disorders and Hepatitis Forum


  • Description: "Welcome to the Liver Disorders, Hepatitis A,B,C Forum - a health community featuring member and doctor discussions ranging from a specific symptom to related conditions, treatment options, medication, side effects, diet, and emotional issues surrounding medical conditions. "
  • Quality: It is accredited by HONcode.

eHealthForum Liver Disorders and  Hepatitis Forum

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Inspire - Hepatitis-C Community


  • Description: An online community connecting patients with Hepatitis-C, and their caregivers, family and friends.
  • Quality: "Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Inspire works with trusted health partners to build safe and secure health and wellness groups."

Inspire Hepatitis-C Community

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MedHelp - Hepatitis Community


  • Description: "The MedHelp site connects people with the leading medical experts and others who have similar experiences. Today, MedHelp empowers over 5.5 million people each month to take control over their health and find answers to their medical questions. MedHelp has over 14 years of accumulated information from doctors and other patients across hundreds of conditions."
  • Quality: Accredited by HONcode.

MedHelp Hepatitis Community

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Hepatitis Foundation International


  • Description: "Cultivating a community that helps people with hepatitis concerns manage and fulfill their lives."
  • Quality: "Hepatitis Foundation International, dedicated to liver health and the prevention of liver related diseases, urges people to get tested and immunized to help prevent new viral hepatitis infections."

Hepatitis Foundation International

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The Hepatitis C Epidemic


  • Description: "This is the first truly interactive website dedicated to bringing about real awareness of the growing Hepatitis C epidemic. Here you can share your "C-Story" with others in the community by uploading your personal video. You can also participate in an online dialogue in our online chat room with others affected by the Hepatitis C epidemic."
  • Quality: "The important aspect of this website is that not only can you find the latest news and information about Hepatitis C, but you can share your experience and broaden your "hepatitis horizon." Knowledge equals power and the hepatitis c epidemic.com is here to deliver knowledge about all things Hepatitis C. This website has been created by people intimately involved with Hepatitis C and liver disease…participate with confidence!"

The Hepatitis C Epidemic

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Hepatitis C Community


  • Description: "Whether you know someone with Hepatitis C, or are thinking of undergoing treatment, are currently undergoing treatment, or have finished treatment, this support forum is for you."
  • Quality: "This online forum is dedicated to the ongoing support of the Hepatitis C Community."

Hepatitis C Community

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Hep Forums


  • Description: "Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals."
  • Quality: Information about the editors and contact details are available.

Hep Forums

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HepC Nomads


  • Description: "Help support and information for those affected by Hepatitis C."
  • Quality: Description is available, registration is needed and it has over 2800 members.

HepC Nomads

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Viral Hepatitis Community


  • Description: This website disseminates knowledge on hepatitis B, hepatitis C and also hepatocellular carcinoma for all hepatologists.
  • Quality: A website edited by Médicine Plus with the institutional support of Bristol-Myers Squibb.



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FaceBook Groups


Facebook is a free social networking site where users can join groups. In these groups, members can post messages, interact with others or find relevant content. A few of the numerous hepatitis groups:




Hep


  • Description and content: "Hep is the go-to online source for educational and social support for people living with hepatitis. The website is devoted to combating the stigma and isolation surrounding Hepatitis, and offers news, in-depth reporting, educational tools, care resources, and peer-to-peer networking."

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Global Hepatitis Initiative


  • Description and content: "Global Hepatitis Initiative (GHI) is a Nonprofit organization set up with an aim of empowering youths around the world to promote priority issues relevant to putting an end to the increasing prevalence of infections with viral Hepatitis B and C among communities. Our passion is clearly to motivate, empower and provide opportunities for these youths from various regions to become instruments of change, pioneering political advocacy and designing effective hepatitis prevention and outreach programs within their local communities. GHI also works to facilitate the inclusion of skilled and powerful young leaders in high level meetings to participate in decision-making that affects them."

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The Hepatitis C Trust


  • Description and content: "The Hepatitis C Trust is the national UK Charity for hepatitis C and has been operating since 2001. It is an entirely patient-led and patient-run organisation: all of it's staff, both paid and voluntary, either have hepatitis C or have had it and have cleared it after treatment."

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Hepatitis C Global Initiatives - Post Treatment Support


  • Description and content: "This is a support group for those who are mainly post treatment. However, if you wish to join us, as your a caregiver to an HCV partner, or child, or are pre tx, or currently on tx, and wish to learn more about post tx, your more than welcome here."

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Hepatitis C Group


  • Description and content: "This group is for people that have the disease and want to get in contact with other people, or people that want to know more about it and get invloved, as i feel that not a lot of people know about the disease."

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World Hepatitis Alliance


  • Description and content: "The World Hepatitis Alliance is a non-governmental organisation that represents hepatitis B and C patient groups from around the world. "

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HCV Support


  • Description and content: "HCV Support is a 501(c)(3) non-profit organization dedicated to providing knowledge, support and encouragement to those affected by hepatitis C. HCV Support also works vigorously to help spread improved public awareness and testing of hepatitis C within its state of incorporation. HCV Support is founded and operated by those affected by hepatitis C in an effort to help provide quality knowledge, support and encouragement to those affected by hepatitis C, both nationally and internationally, via its online informational website and associated anonoymous online support forum."

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National Viral Hepatitis Roundtable


  • Description and content: "NVHR is committed to bringing together hepatitis B and hepatitis C advocates to form a stronger and united national response to the viral hepatitis epidemic in the United States. NVHR networks and partners with hepatitis coalitions, community based, and national organizations."

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Click here to see other hepatitis-related Facebook groups.


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Relevant, selected and quality social media resources from blogs and podcasts to community sites and Twitter users focusing on hepatitis.