Leukemia and Web 2.0 on Webicina.Com

Leukemia, a cancer of the blood or bone marrow, can seriously affect not only the patients but also their families. Quality online resources can help them deal with this condition by providing medically reliable information.

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Microblogging: Twitter and Friendfeed

Micro-blogging is the practice of sending brief text updates, photos, audio/video clips or links and make these public on a website and/or distributed to a private group of subscribers. These messages can be submitted by text messaging, instant messaging or e-mail.

Many micro-blogs provide short commentary about medical news, medical specialties or a company's products and services.

Webicina features two microblogging platforms including Twitter and Friendfeed.

Leukemia on Twitter

Twitter is a free social networking and micro-blogging service that allows its users to send and read other users' updates, which are text-based posts of up to 140 characters in length.

In countries all around the world, people follow the sources most relevant to them and access information via Twitter as it happens—from breaking world news to updates from friends.

Leukemia news / organizations:

Gift of Life: We have been helping victims of leukemia find bone marrow donors since 1991. Help us continue doing so.
LLSusa: The Leukemia & Lymphoma Society -- fighting blood cancers.
CLL (Leukemia) News: ACOR Chronic Lymphocytic Leukemia PubMed Updates
ALL (Leukemia): ACOR Acute Lymphocytic Leukemia (Adult) PubMed Updates
Ahepa Marrow: Mission is to add persons of Mediterranean descent into our database of prospective donors for leukemia patients.
StopLeukemia.org: StopLeukemia.org's mission is to provide personalized support to individuals, families, and friends that have been impacted by leukemia.
Be The Match: Be The Match helps save lives. Thousands of people with life-threatening diseases like leukemia depend on Be The Match Registry to find a bone marrow donor.

People who post about leukemia:

Glenn Gleason: Father, leukemia survivor and insanely curious about everything
Julie Westcott: Cures Rock! Founder & CR! Tour Run Team, cancer warrior, marathon runner, LIVESTRONG Army Leader, Leukemia & Lymphoma Society Team in Training, MBA/PMP.
Justine Kicks Cancer: teenage soccer star and warrior against all things leukemia.
Renee Strutman: Support my campaign for the Leukemia & Lymphoma Society's Woman of the Year
Theresa Petrone: Campaign Manager of Special Events for The Leukemia & Lymphoma Society's Upstate NY/VT Chapter
Harolynn Head: 6yr Leukemia Survivor!! I thank God, my bone marrow donor, and family for helping get through a very difficult time in my life!!

Directories

There are aggregators that help you find people tweeting about leukemia.

Twellow

Twellow.com is currently grabbing publicly available messages from the Twitter.com micro-blogging service. They analyze and categorize each of the users responsible for those messages into the various categories found at Twellow.com.

Just Tweet It

Choose a category and find other Twitter users or list your name to let people find you!

Search.twitter.com

It lets you track all the tweets and Twitter users focusing on leukemia.

Friendfeed

Friendfeed is an aggregator that collects the updates from social networking websites, social bookmarking websites, blogs and micro-blogging updates, as well as any other type of RSS feed. Users can use this stream of information to create customized feeds to share (and comment) with friends. It offers a unique way to discover and discuss information among a community.

Lifting Up Serenity

Phil Burns's daughter Serenity has recently been diagnosed with Leukemia. I'm going to update this page regularly with his updates and so you can show your support in one place. Let's keep him and his little girl in our prayers!