Medicine in Social Media
Multiple Sclerosis in Social Media
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Relevant, selected and quality social media resources from blogs and podcasts to community sites and Twitter users focusing on multiple sclerosis.

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Multiple Sclerosis Community Sites, FaceBook Groups and Forums



Community Sites and Forums


eHealthForum - Multiple Sclerosis Forum


  • Description: "Welcome to the Multiple Sclerosis Forum - a health community featuring member and doctor discussions ranging from a specific symptom to related conditions, treatment options, medication, side effects, diet, and emotional issues surrounding medical conditions."
  • Quality: It is accredited by HONcode.

eHealthForum Multiple Sclerosis Forum

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HealingWell - Multiple Sclerosis Forum


  • Description: "HealingWell.com is a thriving social network and support community for patients, caregivers, and families coping with the daily struggles of diseases, disorders and chronic illness."
  • Quality: Health content is contributed by reputable health organizations, including the National Institutes of Health, Mediwire and e-HealthSource.

HealingWell Multiple Sclerosis Forum

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Inspire - Multiple Sclerosis Community


  • Description: "The Myelin Repair Foundation Multiple Sclerosis Community connects patients, families, friends, caregivers and researchers for support and inspiration."
  • Quality: This community is sponsored by the Myelin Repair Foundation, an Inspire trusted partner.

Inspire Multiple Sclerosis Community

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MDJunction - Multiple Sclerosis Support Group


  • Description: A community of patients, family members and friends dedicated to dealing with Multiple Sclerosis, together.
  • Quality: Accredited by HONcode.

MDJunction Multiple Sclerosis Support Group

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MedHelp - Multiple Sclerosis Community


  • Description: "The MedHelp site connects people with the leading medical experts and others who have similar experiences. Today, MedHelp empowers over 5.5 million people each month to take control over their health and find answers to their medical questions. MedHelp has over 14 years of accumulated information from doctors and other patients across hundreds of conditions."
  • Quality: Accredited by HONcode.

MedHelp Multiple Sclerosis Community

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PatientsLikeMe - Multiple Sclerosis Community


  • Description: "PatientsLikeMe is committed to providing a better, more effective way to capture valuable results and share them with patients, healthcare professionals, and industry organizations that are trying to treat the disease."
  • Quality: "Founded in 2004 by three MIT engineers whose collective experience spans from "running the world's only non-profit biotechnology laboratory to large-scale online commerce applications, PatientsLikeMe is a privately funded company dedicated to making a difference in the lives of patients diagnosed with life-changing diseases. Our personal experiences with ALS (Lou Gehrig's disease) inspired us to create a community of patients, doctors, and organizations that inspires, informs, and empowers individuals. We're committed to providing patients with access to the tools, information, and experiences that they need to take control of their disease."

PatientsLikeMe Multiple Sclerosis Community

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WebMD® - Multiple Sclerosis Community


  • Description: "This community is a place for people with multiple sclerosis to gather for information and support."
  • Quality: Accredited by HONcode.

 WebMD Multiple Sclerosis Community

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Daily Strength - Multiple Sclerosis Support Group


  • Description: "Meet over 6000 friendly, supportive people sharing their experiences with Multiple Sclerosis (MS). Real help from real people."
  • Quality: It is accredited by HONcode.

DailyStrength Multiple Sclerosis Support Group

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This Is MS Multiple Sclerosis Community


  • Description: "Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge."
  • Quality: "For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones."

ThisIsMS

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National MS Society


  • Description: "The National MS Society is a collective of passionate individuals who want to do something about MS now—to move together toward a world free of multiple sclerosis. MS stops people from moving. We exist to make sure it doesn't."
  • Quality: "The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward."

National MS Society

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Multiple Sclerosis Foundation


  • Description: "The Multiple Sclerosis Foundation provides a comprehensive approach to helping people with MS maintain their health and well-being. We offer programming and support to keep them self-sufficient and their homes safe, while our educational programs heighten public awareness and promote understanding about the disease."
  • Quality: Established in 1986, the MSF is a publicly funded 501(c)3 organization. It is also accredited by HONcode.

Multiple Sclerosis Foundation

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Myelin Repair Foundation


  • Description: "We`re the largest non-profit research organization exclusively focused on developing the next generation of MS treatments: myelin repair."
  • Quality: "Since 2004, the MRF has funded basic research that has led to the publication of more than 80 peer-reviewed scientific articles, the identification of more than 150 novel potential myelin repair treatment targets and the discovery of 24 new research tools—animal models and assays—that may help to accelerate research on all neurological diseases."

Myelin Repair Foundation

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MS - Gateway


  • Description: "The Multiple sclerosis portal."
  • Quality: "MS-Gateway is an international community and information website about Multiple Sclerosis, which offers thousands of MS patients an informative, web-based tool for up to date information and resources to manage the disease."

MS-Gateway

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My MS Team


  • Description: "The social network for those living with multiple sclerosis. MyMSTeam gives you the easiest way to find the best team of providers and peers living with multiple sclerosis. Share with others like you, and learn from their experience."
  • Quality: Contact information is available.



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MultipleSclerosis.net


  • Description: "We empower patients and caregivers to take control of MS by providing a platform to learn, educate, and connect with peers and healthcare professionals. We go through a rigorous process to provide you with the most accurate and relevant information."
  • Quality: Accredited by HONcode.



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FaceBook Groups


Facebook is a free social networking site where users can join groups. In these groups, members can post messages, interact with others or find relevant content. A few of the numerous Multiple sclerosis groups:




National Multiple Sclerosis Society


  • Description and content: "The National MS Society is a collective of passionate individuals who want to do something about MS now—to move together toward a world free of multiple sclerosis. MS stops people from moving. We exist to make sure it doesn't."

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MS Society UK


  • Description and content: "The MS Society is the UK’s largest charity dedicated to supporting everyone affected by MS. We fund research, give grants, campaign for change, provide information, invest in MS specialists and lend a listening ear to those who need it."

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The Multiple Sclerosis Resource Centre


  • Description and content: "The Multiple Sclerosis Resource Centre (MSRC) is a proactive and innovative charity, passionately committed to supporting anyone affected by Multiple Sclerosis through access to unbiased information and advice. Our approach is to encourage individuals to make choices that are appropriate to their daily lives, empowering them to maximise their potential."

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Multiple Sclerosis Foundation


  • Description and content: "The Multiple Sclerosis Foundation provides a comprehensive approach to helping people with MS maintain their health and well-being. We offer programming and support to keep them self-sufficient and their homes safe, while our educational programs heighten public awareness and promote understanding about the disease."

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MSWorld


  • Description and content: "MSWorld is an online community offering support and information to those living with Multiple Sclerosis, either having MS themselves or being a caregiver of someone with MS. We are a all-volunteer staff consisting of people living with MS in some way, from all around the world. MSWorld began operation in 1996 with 6 people in a chat room and has grown to our current member base of over 50,000 members. We have been in direct partnership with The National MS Society since 2001. We are collaborating with the MS International Federation to extend our reach to those living with MS throughout the world."

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MS Trust


  • Description and content: "Providing information for anyone affected by multiple sclerosis, education programmes for health professionals, funding for practical research and campaigning for specialist multiple sclerosis services."

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MS Voices: A Multiple Sclerosis Community


  • Description and content: "MS Voices is excited to join the MS community. This page is for anyone interested in multiple sclerosis. We’ll regularly update this page with information and features we hope you’ll enjoy. Please join as a fan or visit anytime you like."

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Click here to see other Multiple Sclerosis-related Facebook groups.


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Relevant, selected and quality social media resources from blogs and podcasts to community sites and Twitter users focusing on multiple sclerosis.