Parkinson's Disease Community Sites, FaceBook Groups and Forums

WebMD® - Parkinson's Disease Community

• Description: "If you're living with Parkinson's Disease or caring for a family member who is, get expert feedback and member support here."
• Quality: Accredited by HONcode.

23andME - Parkinson`s Community

• Description: "Find out how others are coping with Parkinson's. You can ask questions, share information and give advice in our Parkinson's community forums. You can even share your genetic information with other patients, or compare yourself to friends and family members who have also been genotyped by 23andMe."
• Quality: Courtesy of 23andMe, the direct-to-consumer genetic company.

eHealthForum - Parkinson Disease Forum

• Description: "Welcome to the Parkinson Disease Forum - a health community featuring member and doctor discussions ranging from a specific symptom to related conditions, treatment options, medication, side effects, diet, and emotional issues surrounding medical conditions."
• Quality: It is accredited by HONcode.

Eveyday Health - Parkinson's Disease Community

• Description: "Everyday Health is for consumers who need to manage their conditions daily, get answers to their most important health-related questions, or find thorough information about how to get and stay well."
• Quality: Accredited by HONcode.

HealingWell - Parkinson's Disease Forum

• Description: "HealingWell.com is a thriving social network and support community for patients, caregivers, and families coping with the daily struggles of diseases, disorders and chronic illness."
• Quality: Health content is contributed by reputable health organizations, including the National Institutes of Health, Mediwire and e-HealthSource.

iMedix - Parkinson's Disease Support Group

• Description: "iMedix is a free Health community site that helps you find and share health information with patients around the world. The idea is that you can make better health decisions using information and support gained by discussing your health experiences with others."
• Quality: Parkinson's disease symptoms, treatment and information.

Inspire - Parkinson's Disease Community

• Description: An online community connecting patients with Parkinson's disease and their caregivers, family and friends.
• Quality: Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Inspire works with trusted health partners to build safe and secure health and wellness groups.

MDJunction - Parkinsons's Disease Support Group

• Description: "A community of patients, family members and friends dedicated to dealing with Parkinson's Disease, together."
• Quality: Accredited by HONcode.

MedHelp - Parkinson’s Disease Community

• Description: "The MedHelp site connects people with the leading medical experts and others who have similar experiences. Today, MedHelp empowers over 5.5 million people each month to take control over their health and find answers to their medical questions. MedHelp has over 14 years of accumulated information from doctors and other patients across hundreds of conditions."
• Quality: Accredited by HONcode.

Medpedia - Parkinson's Disease Community

• Description: "This community is for patients, caregivers, clinicians, researchers, allied health professionals and anyone interested in sharing information or learning more about Parkinson's disease and related topics."
• Quality: Medpedia is a medical encyclopaedia managed and edited by medical professionals.

National Parkinson Foundtaion Community

• Description: "Specialty Discussion Corners to ask questions about Parkinson's disease, connect with people with Parkinson's and caregivers, or simply chat and make friends within our community."
• Quality: "The mission of the National Parkinson Foundation is to improve the quality of care for people with Parkinson’s disease through research, education and outreach."

Parkinson’s Action Network

• Description: "Today PAN serves as the voice of Parkinson's on numerous public policy issues affecting the Parkinson's community. In addition to continuing our work on NIH funding and research, the Parkinson's community is now a powerful voice on many crucial issues including Parkinson's-specific programs at the Departments of Defense and Veteran's Affairs, FDA drug approval issues, HHS programs (Medicare and Social Security), and our continuing struggle to achieve research freedom for stem cell research."
• Quality: "In partnership with other Parkinson’s organizations and our powerful grassroots network, we educate the public and government leaders on better policies for research and an improved quality of life for people living with Parkinson’s."

Revolution Health - Parkinson's Disease Community

• Description: "Revolution Health is a leading consumer-centric health company founded to transform how people approach their overall health and wellness. By putting individuals at the center of their own healthcare, Revolution Health allows them to make informed choices and offers more convenience and control over their individual healthcare decisions."
• Quality: Accredited by HONcode.

The PatientsLikeMe - Parkinson's Disease Community

• Description: "PatientsLikeMe is committed to providing a better, more effective way to capture valuable results and share them with patients, healthcare professionals, and industry organizations that are trying to treat the disease."
• Quality: "Founded in 2004 by three MIT engineers whose collective experience spans from "running the world's only non-profit biotechnology laboratory to large-scale online commerce applications, PatientsLikeMe is a privately funded company dedicated to making a difference in the lives of patients diagnosed with life-changing diseases. Our personal experiences with ALS (Lou Gehrig's disease) inspired us to create a community of patients, doctors, and organizations that inspires, informs, and empowers individuals. We're committed to providing patients with access to the tools, information, and experiences that they need to take control of their disease."

Facebook is a free social networking site where users can join groups. In these groups, members can post messages, interact with others or find relevant content. A few of the numerous Parkinson`s disease groups:

Parkinson Research Foundation

• Description and content: "The Parkinson Research Foundation is a nonprofit health organization providing Parkinson's research, information and advocacy. PRF is an IRS recognized 501(c)3 organization and contributions are tax-deductible to the extent permited by law. The mission of the organization is to cure Parkinson's and to improve the lives of all people affected by the disease."

Parkinson's

• Description and content: "This group is for people who know anyone suffering with Parkinson's Disease. This is also for people who want to learn about this killing disease."

Parkinson's Action Network

• Description and content: "The Parkinson's Action Network (PAN) is the unified voice of the Parkinson’s disease community—advocating for more than one million Americans and their families."

Parkinson's Disease Foundation

• Description and content: "The Parkinson’s Disease Foundation (PDF) is a leading national presence in Parkinson’s disease research, education and public advocacy. We are working for the nearly one million people in the US who live with Parkinson’s."

Parkinson's Journey

• Description and content: "A place where those living with Parkinson's Disease or those who know someone with Parkinson's Disease can find encouragement and support."

Parkinson’s: Share Experiences, Symptoms, Complications and Successes

• Description and content: "This group belongs to everyone that has a connection to Parkinson’s. Share your stories, concerns, and even your success stories. This group is for anybody to answer any questions put up. Talk about the medications or the treatments you have had or contemplating on having. Feel free to list any difficulties you or someone else is experiencing whether you think it might or might not be related to Parkinson’s or not. Also let us know the successes and treatments you may have had and how you may have overcome some of your difficulties. This can allow you to get hooked up with the people that are “walking in your shoes” with the same symptoms you have."

Peaks for Parkinson's

• Description and content: "The primary purpose of this page is to raise awareness and generate interest in this important cause. A link to the future 'Peaks for Parkinson's' website will be added soon. This will give you the opportunity to learn more about PD, read as I blog from the trail, view photos, track progress and make a donation if desired."

The Michael J. Fox Foundation for Parkinson's Research

• Description and content: "The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson’s today."

Young Onset Parkinson's Disease

• Description and content: "Thousands of young adults in the United States and around the world are living with Parkinson's disease. Like you and me, they're facing the challenges of career, parenting and preparing for the future. The diagnosis of PD is never welcome but can be really difficult when one is young and looking ahead to the future. I hope that this group will help everyone with Young Onset PD deal with the challenges PD presents."

Click here to see other Parkinson`s disease-related Facebook groups.